Research and publications

Explore external research studies made possible by connected real-world data

See how others are using real-world data for predictive modeling, benchmarking, and cross-disciplinary studies.

Publications

1. Real-World Target Trial Emulation of Eteplirsen, Casimersen, and Golodirsen to Evaluate Survival Among Patients with Duchenne Muscular Dystrophy
   June 10, 2026
   Real-world data are needed to understand the treatment effect of eteplirsen, casimersen, and golodirsen (phosphorodiamidate morpholino oligomers [PMOs]) on all-cause mortality in patients with DMD.

2. Systematic Evaluation of Data and Trial Fitness for Oncology Trial Emulation: Empirical Findings from the CARE Initiative
   June 8, 2026
   This study explores the challenges and opportunities of using real-world oncology data to emulate clinical trials, providing insights into data quality, patient selection, and evidence generation.

3. Evaluating Metrics Assessing Surgical Success in Patients Undergoing Cataract Surgery
   April 27, 2026
   In this cohort study of 55,132 patients undergoing cataract surgery, approximately 90.7% achieved surgical success as defined by Merit-Based Incentive Payment System (MIPS) measure 191.

4. Accuracy of an XGBoost-based privacy preserving record linkage system compared with an electronic health record patient matching module in identifying patients shared between nearby academic health centers
   March 23, 2026
   Patients often receive health care from multiple organizations. Privacy Preserving Record Linkage (PPRL) is a technology for linking patient records without releasing personally identifiable information.

5. Investigation into EHR data coverage in the All of Us Research Program via linkage to health insurance claims
   January 23, 2026
   In 2020, the All of Us (AoU) Research Program Data Completeness Task Force identified several challenges in the state of program health data.

6. Health Law Forecast 2026
   January 22, 2026
   The Health Law Forecast 2026 article brings together leading health law practitioners to identify the most significant legal and regulatory developments likely to shape the healthcare landscape.

7. Operationalizing a research-oriented learning healthcare system across covered entities: cross-institutional strategies and innovations
   December 26, 2025
   This paper describes the institutional journey in implementing the concept of a Learning Health System (LHS).

8. Linking Multicenter Electronic Health Records with Socioeconomic Data to Examine Receipt of Standard Versus Premium Intraocular Lenses
   December 17, 2025
   Premium intraocular lenses (IOLs) can improve visual outcomes and reduce dependence on glasses but often require out-of-pocket payment.

Achieve your boldest ambitions

Explore how Datavant can be your health data logistics partner.