# Research and publications

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## Publications

1. **[Real-World Target Trial Emulation of Eteplirsen, Casimersen, and Golodirsen to Evaluate Survival Among Patients with Duchenne Muscular Dystrophy](https://link.springer.com/article/10.1007/s12325-026-03609-0)**  
   *June 10, 2026*  
   Real-world data are needed to understand the treatment effect of eteplirsen, casimersen, and golodirsen (phosphorodiamidate morpholino oligomers [PMOs]) on all-cause mortality in patients with DMD.

2. **[Systematic Evaluation of Data and Trial Fitness for Oncology Trial Emulation: Empirical Findings from the CARE Initiative](https://ascpt.onlinelibrary.wiley.com/doi/full/10.1002/cpt.70310?utm_campaign=B2CJNL_MIS_1536100_ATP_PostPublication_Congratulations_EM1&utm_medium=email&utm_source=sfmc)**  
   *June 8, 2026*  
   This study explores the challenges and opportunities of using real-world oncology data to emulate clinical trials, providing insights into data quality, patient selection, and evidence generation.

3. **[Evaluating Metrics Assessing Surgical Success in Patients Undergoing Cataract Surgery](https://jamanetwork.com/journals/jamaophthalmology/article-abstract/2847385)**  
   *April 27, 2026*  
   In this cohort study of 55,132 patients undergoing cataract surgery, approximately 90.7% achieved surgical success as defined by Merit-Based Incentive Payment System (MIPS) measure 191.

4. **[Accuracy of an XGBoost-based privacy preserving record linkage system compared with an electronic health record patient matching module in identifying patients shared between nearby academic health centers](https://academic.oup.com/jamia/advance-article/doi/10.1093/jamia/ocag020/8527995?login=false)**  
   *March 23, 2026*  
   Patients often receive health care from multiple organizations. Privacy Preserving Record Linkage (PPRL) is a technology for linking patient records without releasing personally identifiable information.

5. **[Investigation into EHR data coverage in the All of Us Research Program via linkage to health insurance claims](https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0336967)**  
   *January 23, 2026*  
   In 2020, the All of Us (AoU) Research Program Data Completeness Task Force identified several challenges in the state of program health data.

6. **[Health Law Forecast 2026](https://www.americanhealthlaw.org/content-library/connections-magazine/article/a879dda5-35f9-46fb-ad45-1b0799343d74/Health-Law-Forecast-2026)**  
   *January 22, 2026*  
   The Health Law Forecast 2026 article brings together leading health law practitioners to identify the most significant legal and regulatory developments likely to shape the healthcare landscape.

7. **[Operationalizing a research-oriented learning healthcare system across covered entities: cross-institutional strategies and innovations](https://www.nature.com/articles/s44401-025-00051-2)**  
   *December 26, 2025*  
   This paper describes the institutional journey in implementing the concept of a Learning Health System (LHS).

8. **[Linking Multicenter Electronic Health Records with Socioeconomic Data to Examine Receipt of Standard Versus Premium Intraocular Lenses](https://www.sciencedirect.com/science/article/pii/S2950253525001133)**  
   *December 17, 2025*  
   Premium intraocular lenses (IOLs) can improve visual outcomes and reduce dependence on glasses but often require out-of-pocket payment.

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